I like to do a review post of the year at this time, it helps me keep focus and it’s always good to look back. I know my health has been a main issue for the past year but I will try and focus on other things in this post, but first a quick run down on my issues. In January 2017 I was re-diagnosed with Stiff Person Syndrom with PERM (Progressive encephemyelitis with rigidity and myoclonus.) I immediately went for IV steroid treatment and then high dose steroids for 3 months with little effect (other than making me put on nearly two stone.) I was then approved for IVIG (intravenous immunoglobulin) which I had hoped would be my miracle cure but wasn’t. I did however have some improvement so I’m continuing with this for a while longer to see if the improvements get better. I am still unable to walk very far and in pain every moment of every day. I am still trying to live life as full as I can and make lots of memories for my lovely children.
So here goes, illness aside, this is what we have been up to in 2017.
In January, along with a lot of reflecting on life, I wrote a post of our Christmas presents last year. Reading back I’m surprised at how much fun we had with Lego Dimensions, a game that has hardly been played since last January! The race track has had lots more play time though.