I have had Stiff Person Syndrome for almost seven years now. Celine Dion is newly diagnosed but she is the first celebrity that has been diagnosed with this condition. What does it mean for her? Well, it’s not an easy ride and that’s about all I can honestly say. From Celine Dion’s announcement on Instagram…
rare disease
Show Your Rare – Make Them Listen
Today is Rare Disease Day. I’ve written lots on my rare condition and also Star’s condition, but today I wanted to write about getting help when you are rare. Star Way back in 2013, Star woke up one day with a wonky neck. I took her to the GP who said to take her to…
Juvenile Arthritis Research – A Guest Post
I’ve known Rebecca who blogs at The Beesley Buzz for a few years now and when she asked if she could write something for Raisie Bay I was happy to host. Rebecca discovered her young daughter had Juvenile Idiopathic Arthritis back in 2015. And now her husband Richard is doing something incredible to make a…
