I have to admit, my daughter, Star, has been a zebra longer than me. A medical zebra I mean, someone who suffers from a rare condition. The problem with rare conditions is that Doctors tend to look past them and blame something else. They are looking for horses, not zebras. Star’s problems started when she…
rare disease day 2018
School, Snow, Crochet and Reading
Back to School Half term seemed to fly by so quickly, how long until Easter? The kids went back to school today and I went to pick them up. Hubby had to take eldest daughter to a very important meeting on the other side of town so it was down to me to fetch the…
A Medical Zebra, a Post for Rare Disease Day 2018
Where it all began When I was in hospital two years ago I became a medical guinea pig. Most of the time I didn’t mind, it was a teaching hospital and the young doctors needed to learn. I was a rare case and difficult to diagnose. When I first arrived at the hospital the first words…