Despite my hopes and wishes the infusions I received last week have not worked. Not only that but I’ve had the most horrendous side effects and I have decided to not have the treatment again. I’m feeling frustrated that my treatment hasn’t worked and that I still can’t do anything. I’m frustrated with my son’s…
#wordoftheweek
Word of the Week – Infusions
This week has been mostly about going to the hospital every day to receive my intravenous infusion of immunoglobulin. Each day I have been hooked up for three to four hours and sitting in a reclining chair on a ward with mostly Multiple Sclerosis patients. When you receive these infusions you get to see familiar…
Word of the Week – Appointments
This week has been all about appointments.My eldest son had a GP appointment and an appointment at the bank.Hubby has a dentist appointment today.My daughter had her regular appointment with the nurse on Wednesday and while we were there we talked about the Little Man and now he has a referral and an appointment in…
Back to School, Finally!
Well it happened, our extended holiday ended and the kids went back to school on Monday. I don’t who was most nervous, me or the kids!Star had a bit of a wobble because she didn’t know where she was going for registration. She was calmer when we gave her coping strategies, first she had to…
Word of the Week – News
We’ve had good news and bad news this week, which would you like to hear first? Okay, let’s start with the bad news. Last Friday I ended up in A&E and discovered that my condition is progressing much faster than I would like. Roll on my time to visit my consultant where I’m going to…
