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  1. jeremy@thirstydaddy

    my wife has hyper laxity, leading to early onset degenerative arthritis. All the best to you and your daughter going forward. I'm glad that you were finally properly diagnosed and can now start to deal with the problem #tuesdaytreasures

  2. angiemwebster77

    Raising awareness is so important I agree. I hope that one day these rare illnesses will be so rare they are never heard of again. You aptly named your daughter, you are both so brave, it must take some strength to live with pain every day. Thank you for linking up with #TuesdayTreasures

  3. wendyr1505

    I have never heard of any of these before, I think you are amazing for raising awareness and hopefully one day you and your daughter can get the correct treatment you need. My Dad has a really rare condition that pretty much no one has ever heard of, he has even left his specialist consultants confused a few times. I think our bodies are amazing and it is so hard to discover all the different ways things can o wrong and how to cure them when they do. Raising awareness is so important as is further research into the human body and ways to cure these rare diseases. Thank you for linking up to #BlogCrush xx

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