Reader Interactions


  1. Kim Carberry

    It must be hard to find that balance with going out and resting. It might be easier when the weather is warmer and you can get out in the garden.
    Good luck with the consultants appointment. It can’t hurt to ask about the new drug.
    Well done on your win! The Touchpoints sound interesting.
    It sounds like the crocheting is going well.

  2. Sheryl

    Thanks for joining us, Anne! I’m naturally bad at the whole balancing thing, so I totally get you. Congrats on the Naidex win, I am looking forward to learning more about that in your next post!

    Let me know how the Rituximab goes as well. I tried it as well for Lupus. It was fine the first round, but the second round my body had an allergic reaction and I went into anaphylaxis 🙁 A pity because in Singapore where I live, we need to pay out of pocket, so that’s about USD7,300. Anyway, I really hope it goes well for you!

    • Anne Sweet

      Thanks Sheryl x I have been learning about all the side effects of Rituximab but I also worked myself into a frenzy about the side effects of IVIG and I don’t have any. So I guess it must be worth a try if my consultant agrees. I’ve a feeling he won’t because the hospital is penny pinching and I probably won’t be approved.

  3. Jayne

    What a lovely roundup Anne. Hopefully, you can enjoy some time in the garden when the weather picks up.
    You are doing so well with the crochet. I love your little bunny, that’s brilliant. I’m itching to start another project, not sure what yet though!
    The touchpoints sound interesting, will keep a look out for an update on how you get on with these. x

  4. Niamh

    You are so talented I love to crochet but I have no idea to even start with a bunny. Your family are so lucky to receive such lovely hand made gifts. And congratulations on your own win with the Touchpoints. How nice to finally win a competition! I hope you get plenty of time to recover after your treatment and good luck with your consultant bringing up the new medication is always a tricky one. Take care, Niamh x

    • Anne Sweet

      Thank you Niamh, I enjoy making crochet toys. It is great to win a competition and the Touchpoints have been brilliant. I didn’t have much luck with my consultant though, but that’s a story for another day x

  5. Rhiann

    A lovely post for this month Anne. It was a lovely little round-up for the month.

    I hope that the weather improves where you are and you can enjoy some quiet time in the garden soon! I know it’s something that I enjoy when the weather improves, especially when symptoms leave me unable to get out of the house as much as I would like. It’s such a pleasure to enjoy some peace and quiet, and to enjoy the breeze and warm sunshine on my face.

    And what an amazing crochet bunny you have made! It’s so lovely! I wish it was something that I was able to do but I wouldn’t know where to start, things like that has never been my strong point!

    I hope you enjoy the rest of the month

    Best wishes

    Rhiann x

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