I’ve had a few people say to me “at least you don’t have cancer” including my husband. I’m so glad I don’t have cancer, it’s an evil disease that doesn’t care who it attacks, young or old. Nearly everyone knows someone with cancer. Getting a diagnosis feels like being given a death sentence. Even those…
PERM
Keep on Hoping, Keep on Wishing but Most of all Keep on Believing
Last week I went to A&E because I really thought there was something wrong with my heart. It felt like someone was sitting on my chest, crushing me and making it hard for me to breathe. I called my GP but I was told to go straight to A&E. I was given a red card…
My New Treatment
On June 5th I am going to hospital as a day patient for five days to try out a new treatment. I will be getting an intravenous transfusion of immunoglobulin each day. I am both excited and scared. I’m excited because I’ve heard that this treatment can be really good. It could make me feel…
Stiff Person Syndrome and What it Means
As you may know if you’ve read my blog before I am a disabled mother. I was diagnosed with Transverse Myelitis on Jan 1st 2016 but my consultant changed that diagnosis just a year later after some tests showed that I have Stiff Person Syndrome. I wanted to record the start of my journey here…
