Tomorrow is Stiff Person Awareness Day and I thought I’d try and give you some insight on what it’s like living with Stiff Person Syndrome (SPS) First of all, it seems as though it’s different for everyone. I’ve spoken to, and met, many people with SPS but no-one has exactly the same symptoms. Diagnosing SPS…
stiff person syndrome
I Told You I was Ill
‘I told you I was ill’ is the famous epitath of Spike Milligan who died at the age of 83 in February 2002. Listening to some women talk in the hospital yesterday brought it home to me how this epitath could be the serious comment of so many under healthcare at the moment. It’s not…
At Least You Don’t Have Cancer
I’ve had a few people say to me “at least you don’t have cancer” including my husband. I’m so glad I don’t have cancer, it’s an evil disease that doesn’t care who it attacks, young or old. Nearly everyone knows someone with cancer. Getting a diagnosis feels like being given a death sentence. Even those…
Show Your Rare – Make Them Listen
Today is Rare Disease Day. I’ve written lots on my rare condition and also Star’s condition, but today I wanted to write about getting help when you are rare. Star Way back in 2013, Star woke up one day with a wonky neck. I took her to the GP who said to take her to…
What it is like Living with a Chronic Illness
I can’t speak for everyone because we are all different. But living with a chronic illness is often misunderstood. Imagine that the next time you get one of those horrid colds that knock you off your feet, disturb your sleep and make you feel like crap for a few days. Then you get better and…
