Today is Transverse Myelitis Awareness Day. Many of you will have not had heard of Transverse Myelitis, neither had I until it came into my life on January 1st this year. I get asked lots of questions, most of them repeatedly because it’s such a rare condition and no-one really has all of the facts….
transversemyelitis
Getting Physical
Do you remember that Olivia Newton John song, Physical? No, well I do sometimes forget how long I’ve been around. It was a hit in 1981 and there was much gyrating in leotards in the video! (If memory serves me well it was pretty steamy for the time.) I’m a regular at the gym myself…
Sixteen Weeks – hitting a low point.
Sixteen weeks ago my life changed dramatically. Sixteen weeks ago I was in hospital unable to move, not knowing what was happening to me and feeling so afraid. Time seems to have passed quickly which feels strange because I thought that time would go slower while I waited and waited for some sort of change….
Medical Mysteries
I had heard through the grapevine (ok, the TM Society’s Facebook Page) that there had been a lad with Transverse Myelitis on Channel Five’s Medical Mysteries on Thursday evening. I’d already missed it (thanks to the Little Man Playing Jurassic Lost Worlds) so I had to watch in On Demand. The story of a young,…
Disabled – But Still Me
I am disabled! There, I’ve said it. I still don’t really believe it though, it’s a hard label to accept. I have two disabled children and it was hard to accept that, but how can I accept that it applies to me? When I was paralysed by a spinal inflammation, Transverse Myelitis, at the beginning…