I have had Stiff Person Syndrome for almost seven years now. Celine Dion is newly diagnosed but she is the first celebrity that has been diagnosed with this condition. What does it mean for her? Well, it’s not an easy ride and that’s about all I can honestly say. From Celine Dion’s announcement on Instagram…
Disability
Finishing to Wishing, My Chronic Illness Post for November
Each month I love to join in with Sheryl from A Chronic Voice with her chronic illness writing prompts. This month she has chosen, Finishing, Fatiguing, Easing, Comforting and Wishing. Using the prompts I can let my readers know how I am coping with my chronic illness each month. I have a rare neurological condition…
What happened to Star and Elhers Danlos Syndrome
This is the story of what happened to my 17 year old daughter Star, and how her Elhers Danlos Syndrome caused her to end up in hospital for nearly four days. Friday 19th August began with a visit to the GP with Star. She had been for blood tests the week before and the GP…
Chronic Illness Post for May, What a Migraine!
I usually join in with Sheryl’s writing prompts each month but I know she’s having a rough time at the moment and she hasn’t given any prompts yet for May. I did want to update you on my chronic illness though and one of the main problems have been migraine related. Migraine I guess my…
My Chronic Illness and how I’m Getting On in April
Each month I like to join up with Sheryl’s Writing prompts community to talk about my Chronic Illness and how I’m getting on. The Prompts this April are forgetting, modifying, maintaining, vocalising and trusting. FORGETTING Brain fog is an awful condition and it’s more than just forgetting a little thing here or there. I can…