Monday, 15 January 2018

If You Fell Down Yesterday, Stand Up Today

a frosty twig with the quote, if you fell down yesterday, stand up today by H.G. Wells
photo courtesy of Les Anderson

If you read my post last week, Let Me Not Beg for the Stilling of my Pain, then you would have probably noticed that I was not as upbeat as I usually am. I try my hardest to be positive but sometimes, even while trying, I feel pretty bad inside.

I was really ill, I'd been ill for weeks and I really thought it was time to just give up. But giving up is not really in my vocabulary.

Last week I spent every day in hospital as an outpatient. I received my IVIG treatment for the third time. The first time I'd had very little result, the second time I'd had some good signs but the side effects nearly killed me. This time I was scared about the side effects and had little faith in the treatment. I also harbour guilt for taking such an expensive medication when it was not doing me any good, but talking to other patients they all said I needed to keep going as it does get better. 

So, last Monday I had fallen. I had fallen hard and didn't have much hope in getting back up again.

But, I did. I had my treatment, I have had very minimal side effects, and I feel much better!
Okay, it's not been a miracle cure, but I have less pain (I have to say that again, I have less pain!!) and I have a little more energy. I feel better inside and my positivity has returned. I'm standing up again. (Almost literally but only for short periods,) and it feels good. I have already been booked in for my next two treatments but I will see my consultant before then. Depending on how long I feel better for he may change my treatment dates. 

I have a lot to look forward to this year, and although it started pretty rough, I now have lots of hope that things are going to be just fine.



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School Runs and Shopping Trolleys
Debs Random Writings
Naptime Natter

Friday, 12 January 2018

Word of the Week - Intravenous




As you can guess, it's treatment week for me as I go to hospital each day to receive my IVIG. That leaves me very little time for anything else.

Today is my last day and I'm feeling okay, no side affects as of yet and a decrease in pain...fingers tightly crossed.

Another thing that happened this week was that my kids went back to school. It was a little stressful at first but more for me getting everything ready for them, than for them. They were excited to get back and have been great.

So that's my week in a nutshell! How's your week been?


The Reading Residence


Wednesday, 10 January 2018

Beating the January Blues with Office Narnia

What's your work space like? Do you have room to yourself? Do you share with others? Do you work from home. I've always preferred working with others so we can chat while working, mostly about the stuff we'd rather be doing than working.

Now I work from home, although I don't really consider it working, but I do put plenty of hours in on this little blog of mine. Even so, I do often find my mind wandering to other things and places. How I would love a view out of my window, something other than a soggy garden and a shed. I'd love to be able to look out on rolling countryside, or to see the sea from my window. Now that would be just perfect and I'd be happy to work all day.

Now imagine having a magic filing cabinet that you could transport you to anywhere you wanted to be. What would be your office Narnia? Where would you go to beat the January blues?

I'm thinking, sitting by the poolside reading a book, not too hot, but warm and breezy. It would have to be quiet too, the pool could be empty, but I like to be near water. Maybe the pool could be a private one in a mansion, high in the hills with rolling countryside all around. I would pick up my book, read a few pages, then lie back and just relax. Drinks would arrive when I was thirsty and food when I was hungry. I'd have nothing to worry about, I could stay there all day. See how easy it is to let your imagination run away with you.






Disclosure: collaborative post

Monday, 8 January 2018

Getting Cosy at Home for the Winter Season

Do you like to change your home according the season? I know I like things bright and airy during the summer, but in the winter months my focus is on warm and cosy. This often means putting up some thicker curtains in my living room and adding lots of throws and cushions. It's nice to get warm and cosy on these cold winter evenings. I've also crocheted my own little blanket to keep my legs warm.


It's not perfect but it's my first attempt, and it's very cosy. 

I also think that winter is a good time to add a splash of colour to the home, I may get the paintbrushes out, or just hang a nice picture on a bare wall. Anything to brighten up those dark dreary days. Of course lighting is important too, it gets darker so much earlier and too much darkness can be depressing so I like to keep my home bright whenever I can. As well as adding an extra lamp I sometimes feel that candles add just that little bit of extra light and if they are scented they can also create a warmer welcoming environment.

Our garden in Winter gets very neglected. We can't even venture down to the bottom of the garden because the drainage is poor and it's just like a bog. We really need to get this sorted. Our garden furniture is covered up in an effort to keep it dry and clean. Unfortunately our poor patio table became a victim of storm Eleanor. My hubby had left the parasol up and when the wind blew it over it shattered the glass top of the table. Lesson learnt! You can never be too careful.

Winter is also a time for checking that you are safe in your home, is your heating working properly, have you had your boiler checked. What would you do if it let you down when it was really cold, or even worse, what if it was faulty and letting of harmful fumes?
Do you have secure locks on your doors and windows? With there being much more darkness in winter it creates more opportunities for those that burgle. I know that unexpected disasters can happen any time of year but it's always a good time to check that you have adequate insurance.

Chill Insurance have devised this great little e-book with lots of ideas for decorating and designing your perfect winter home. 

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Disclosure: This is a collaborative post

Let Me Not Beg for the Stilling of my Pain

It is during our darkest moments that we should focus to see the light - aristotle
photo credit Annie Spratt - Unsplash

























Today I'm off to the hospital for my third round of IVIG (Intravenous Immunoglobulin.) The first time I had big hopes that it would be my miracle cure. The disappointment after nearly broke me. The second time I had less hope but thought it was worth it to keep trying, I'd had a lot of people telling me that it gets better each time you had it. I had a little relief from some of my symptoms, the tingling was reduced, I had a little more energy and my twitching was decreased. However, the side effects were huge giving me massive migraines worse than any I've had in my thirty year experience of migraines. This week I am prepared, I'm going to keep hydrated, at least three litres of water a day. I will take pain killers at regular intervals, and I'm going to ask for  slower infusions which can help. I am hoping that the results will be better than last time and that the side effects will just leave me alone.

I'm going to be honest. Life isn't good at the moment. I have so many issues going on and I feel useless, helpless, I just can't cope. How can I be there for others when some days I can barely hold my head up. I can't deal with it all, it's driving me down into the darkness. And if life's problems are not enough, my health is truly depressing me. I'm scared, really scared, I'm not improving, I'm getting worse. Some days I really believe that I am dying.

I need someone to rescue me, to save me, to make everything okay again.
Maybe that someone is me, maybe I'm the only one that can do this. Let me not beg for the stilling of my pain, but for the heart to conquer it.



Let me not beg for the still of my pain, but for the heart to conquer it
photo credit David Ragusa - Unsplash

School Runs and Shopping Trolleys
Debs Random Writings
Naptime Natter

A little Note About Positive Reviews on Raisie Bay



Some people only write reviews when things go wrong with products, which is good because it lets people know that there could be potential problems. I've also seen negative feedback with say things like, I had to return this item because the colour did not suit me...is this useful?

I write reviews on most items I buy because I like to give genuine feedback. If I have a genuine problem with a product I will write my review in the appropriate place.

I write reviews on my blog too, but they are mostly positive. Why? Because I only write reviews for the things I've loved. If I don't love them I let the person who sent me them know with details why and then let them decided if they would rather me write a negative review or not write one at all. It's always the latter.

This is my blog, my place and I'll let you know about the things I love. If you want to find out what other people have hated about the product then you will need to look elsewhere.

My reviews may all be positive, but they are still genuine.
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