Last September I booked a holiday in Devon. I was so excited, we had not been away since 2013, mostly because of Star’s operations and hospital appointments. It had been a tough couple of years and the thought of a few days away was just what I needed. I picked a holiday camp in Devon…
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Disabled – But Still Me
I am disabled! There, I’ve said it. I still don’t really believe it though, it’s a hard label to accept. I have two disabled children and it was hard to accept that, but how can I accept that it applies to me? When I was paralysed by a spinal inflammation, Transverse Myelitis, at the beginning…
School Days, Past, Present and Future!
As it’s almost the end of the school year I’ve decided to do a kind of round-up post of how school has gone for us so far. Past It seems like yesterday when Star was starting nursery. It’s always an emotional time letting them go. The school backed on to our garden and you could…
Update on Stars Neck
It’s been almost five weeks since Star hurt her neck. To me I see no improvement at all and she is still in pain. The hospital decided against intervention such as traction or manipulation and I’m glad because it would have been so distressing for her. However, I’m really concerned that she’s not improving. Today…
Star and the Broken Neck
Star is hypermobile, she was diagnosed almost two years ago when we were having the pain in her knees investigated. We didn’t really understand the full implications, or that there were several types of hypermobility. We have now been promised that she will have a full diagnosis of the type of hypermobility she does have…