As you may know if you’ve read my blog before I am a disabled mother. I was diagnosed with Transverse Myelitis on Jan 1st 2016 but my consultant changed that diagnosis just a year later after some tests showed that I have Stiff Person Syndrome. I wanted to record the start of my journey here…
EMG
Getting Zapped – More Hospital Tests
I had some tests at the hospital last week and it was quite a surreal experience. I arrived for my 6.30pm appointment and the hospital out patients was closing down for the evening and spookily quiet. I waited for no time at all as I checked in, was told immediately what desk to go to,…
Even I Couldn’t Imagine This!
I saw my neuro-consultant last week, the first time since I was released from hospital back in January. I took notes, asked tons of questions and spent the entire consultation in a complete brain fog. He had to tell me three times where I had to go next for a blood test. I thought I’d…