IVIG Today I’m off to the hospital to have my IVIG. Just in case you are wondering it’s intravenous immunoglobulin and it’s an infusion which is one of the few treatments for my condition, Stiff Person Syndrome. It’s not bad, I go in, sit in a recliner chair and have my weight and bloods tested…
hospital
Word of the Week – Star
On Monday, Star was sent home from school. She didn’t go in on Tuesday and just lay on the sofa all day. Then on Wednesday she had a hospital appointment that she really couldn’t miss. So Wednesday morning.we set off to the hospital only to find her consultant was running late. We had to wait…
If You Fell Down Yesterday, Stand Up Today.
photo courtesy of Les Anderson If you read my post last week, Let Me Not Beg for the Stilling of my Pain, then you would have probably noticed that I was not as upbeat as I usually am. I try my hardest to be positive but sometimes, even while trying, I feel pretty bad inside….
Let Me Not Beg for the Stilling of my Pain. I need a Miracle
photo credit Annie Spratt – Unsplash Today I’m off to the hospital for my third round of IVIG (Intravenous Immunoglobulin.) The first time I had big hopes that it would be my miracle cure. The disappointment after nearly broke me. The second time I had less hope but thought it was worth it to keep…
Word of the Week – Fractured
If you read my post on Wednesday then you will know that my daughter Star has a fractured wrist. She did it at school by falling up the stairs last week. We thought it wasn’t serious but still took her for medical care on a few occasions. However, our lack of urgency meant that we…