Subscribe to blog via Email

Raisie Bay

treatment

Word of the Week – Intravenous

by 9 Comments

As you can guess, it’s treatment week for me as I go to hospital each day to receive my IVIG. (Intravenous Imunoglobulin) That leaves me very little time for anything else.

Today is my last day and I’m feeling okay, no side affects as of yet and a decrease in pain…fingers tightly crossed.

Another thing that happened this week was that my kids went back to school. It was a little stressful at first but more for me getting everything ready for them, than for them. They were excited to get back and have been great.

So that’s my week in a nutshell! How’s your week been?

The Reading Residence



Hospital – Word of the Week

by 8 Comments

Could it be anything else really seeing as I’ve been there every day!

Each day I’ve gone to the day treatment room and hooked up to a drip for my IV steroids. It’s not so bad really, it takes half an hour or so once I’m on and the radio is there for company. The chairs are reclining and cosy and the whole procedure is not so bad at all. My arm throbs while it takes place but it’s not unbearable. It leaves a horrid taste in my mouth but a couple of mints helps with that.

The worst part has been actually getting there and getting home. We have to go straight from picking the kids up from school and so they have to come with us because there is no time to drop them off anywhere. They have been really good but it’s cost us a fortune in the snack shop! Coming home we hit rush hour traffic so by the time we get back we are rushing to get the kids fed and ready for bed.

Thank fully we have managed an earlier appointment for the latter part of the week which has been really helpful.

Side affects have been insomnia, I can go to sleep okay but I’m waking up really early and not being able to get back off again. Then I’ve felt tired all day. My blood sugar has been high and my blood pressure has risen but I’m coping alright with that. I’ve have been feeling a little nauseous but nothing too bad, I’ve not eaten very much this week.

As for results, it is early days yet and I still have more months of oral steroids to take. I’m keeping hopeful that they will work.

The Reading Residence