In the Beginning Two and a half years and a couple of weeks ago I woke up with pins and needles and ended up in hospital paralysed. It seemingly came from nowhere, but I now believe I did have hints that something was happening with my body. After two weeks in hospital I came home…
Disability
Word of the Week – Wheels
My Word of the week this week is Wheels. Meet Whill. A lot of things have happened this week. I spent the weekend at a fabulous Retreat. The Little Man has been having trouble at school and we have already had a meeting with the head and his teacher. But, as you can see,…
Autism – If Only I Knew
I have two, possibly three children with high functioning Autism. If your child is not developing properly as a young child or baby then your health visitor will generally lead the way to seeing if your child has autism or other special needs. Often, though, autistic children can slip through the net and diagnosis does…
Zebra Child of a Zebra Mum
I have to admit, my daughter, Star, has been a zebra longer than me. A medical zebra I mean, someone who suffers from a rare condition. The problem with rare conditions is that Doctors tend to look past them and blame something else. They are looking for horses, not zebras. Star’s problems started when she…
A Medical Zebra, a Post for Rare Disease Day 2018
Where it all began When I was in hospital two years ago I became a medical guinea pig. Most of the time I didn’t mind, it was a teaching hospital and the young doctors needed to learn. I was a rare case and difficult to diagnose. When I first arrived at the hospital the first words…