On June 5th I am going to hospital as a day patient for five days to try out a new treatment. I will be getting an intravenous transfusion of immunoglobulin each day. I am both excited and scared. I’m excited because I’ve heard that this treatment can be really good. It could make me feel…
pain
I Wish I Didn’t Hurt.
I wish I didn’t hurt. When my Little Man gets into bed with me in the morning and wakes me up with a cuddle. It’s so sweet and I know it won’t last for much longer and I love it so much….but it hurts me, my broken body hates too much contact. …
The Day My Diagnosis Changed.
In January last year I was diagnosed with an auto-immune neurological condition, Transverse Myelitis. There are a few things that I have learned about neurological conditions. They are difficult to diagnose Everyone is different, even with the same diagnosis Diagnosis can change My diagnosis changed on 10th January, one year and 9 days after my…
Medication – Word of the Week
I’m in the situation at the moment where my medication is ruling my life. I had a new medication prescribed by my neuro consultant a couple of weeks ago. As soon as I started taking a very low dose I felt ill. I was told to keep on a low dose for 14 days and…
Pain – My Word of the Week
Two weeks ago we went on holiday and it was lovely. We were out every day and had loads of fun. Now two weeks later I think I’m still paying for it with the pain. On my help forum other TM sufferers always talk about how having one day of fun means having to put…
