I have had Stiff Person Syndrome for almost seven years now. Celine Dion is newly diagnosed but she is the first celebrity that has been diagnosed with this condition. What does it mean for her? Well, it’s not an easy ride and that’s about all I can honestly say. From Celine Dion’s announcement on Instagram…
Search Results for: stiff person syndrome
10 Facts About My Condition Stiff Person Syndrome
I have Stiff Person Syndrome, I am one in a million I missed this years Stiff Person Syndrome Awareness Day. I’m currently in a very bad position regarding my condition but I have decided to share this post anyway. Here are 10 facts about Stiff Person Syndrome. I have this stupid Stiff Person Syndrome which…
Stiff Person Syndrome and What it Means
As you may know if you’ve read my blog before I am a disabled mother. I was diagnosed with Transverse Myelitis on Jan 1st 2016 but my consultant changed that diagnosis just a year later after some tests showed that I have Stiff Person Syndrome. I wanted to record the start of my journey here…
Stiff Person Awareness Day 2019
Tomorrow is Stiff Person Awareness Day and I thought I’d try and give you some insight on what it’s like living with Stiff Person Syndrome (SPS) First of all, it seems as though it’s different for everyone. I’ve spoken to, and met, many people with SPS but no-one has exactly the same symptoms. Diagnosing SPS…
My Chronic Illness November Update Post
At the beginning of each month I write about my Chronic Illness. I used to follow writing prompts from Sheryl who writes A Chronic Voice. But she’s not written any for a while so I just do my own round up now. This is my November Update post. A while ago I started writing down…