I’m going to try and use this month’s prompts from Sheryl at A Chronic Voice, to express myself. I often gloss over a lot of the effects of my illness, in particular after I was accused of moaning too much. I’ll explain more as we go along. Repeating I use an app on my phone…
Disability
On Yer Bike! Or Tricycle?
Do you remember your first bike, or tricycle? I’m not sure if I had one when small but I do remember coming home from school one day and my Mum had bought me a brand new bike. I could ride it, but if I’m honest, I didn’t go out on it much and ended up…
Occupational Health in the Home
Yesterday I was visited by an Occupational Health Therapist. This is only my second visit since leaving hospital three years ago. On the first visit I was provided with all the disability aids that I needed at that time. I was grateful for them, but was also sure that they would be returned within few…
Regrouping, Investigating, Boosting, Setting and Reviving
Regrouping I think when it comes to my health I am regrouping things all the time, it’s always a game of catch up. It’s hard sometimes to prioritise so things go astray, but occasionally I have to regroup and get it all back together again. I guess it’s the same for everyone, we all fall…
The Long and ‘Tall’ of it, Marfan Syndrome
We had a visit to the geneticist last week. It had been 18 months since Star had screamed the place down while they took her blood for testing. Thankfully long enough for Star not to be too anxious about her last visit. We had a letter some six months after her last visit saying that…