Last week I went to A&E because I really thought there was something wrong with my heart. It felt like someone was sitting on my chest, crushing me and making it hard for me to breathe. I called my GP but I was told to go straight to A&E. I was given a red card…
chronic pain
Stiff Person Syndrome and What it Means
As you may know if you’ve read my blog before I am a disabled mother. I was diagnosed with Transverse Myelitis on Jan 1st 2016 but my consultant changed that diagnosis just a year later after some tests showed that I have Stiff Person Syndrome. I wanted to record the start of my journey here…
One Year Later
It’s seems strange having an anniversary on New Year’s Day, at least it’s not one that’s easily forgotten, not that I would ever forget. One year ago today I woke up with pins and needles. I was trying all I could think of to get rid of them, I even tried asking Google and my…
Bad – Word of the Week
It’s not been a good week. Let’s begin at the beginning. Monday started ok, I went food shopping with Graham. We went to a big supermarket and I got to ride around in one of those motorised shopping trollies. I bet you’ve seen them by the entrance and thought, ‘oh if I could wizz around…
The Day I Did Too Much Physio
Anyone who has needed physio therapy will probably relate to the way you try so hard to please your therapist. It’s probably because deep down you believe they are the one that is going to fix you and you are desperate to be well again so you’ll do whatever they ask and probably more. As…